Patient Support Webinar: What is it Like to Participate in a Clinical Trial?
Watch Ergomed/PSR Orphan Experts‘ patient support webinar titled “What is it Like to Participate in a Clinical Trial?”.
This is a recording of a Webinar that we hosted in October 2020.
About this webinar:
After exploring the landscape of drug development in our first webinar, our second webinar will focus on what it means to participate in a clinical trial, with an emphasis on the patient’s perspective.
It is crucial for patients and their families to understand what is involved, in addition to being aware of their rights and obligations, if they so choose to participate in a clinical trial.
Topics covered in this webinar:
The importance of clinical trials
The process of screening and enrollment
The ‘Informed Consent’ process
Rights and obligations of a clinical trial participant
Logistical challenges and possible solutions
At the end of the webinar, you will have the opportunity to ask our experts any questions you may have.
About our expert speakers:
Bojana Mirosavljevic, PhD – Patient Engagement Officer, Ergomed/PSR Orphan Experts. Bojana’s role is to ensure that the patient’s perspective is always considered during a clinical trial. Educated as a chemist and embryologist, in 2010 Bojana founded and is still president of an association for children with rare diseases in Serbia. In 2013, Bojana lost her daughter Zoya to a severe and rare form of Batten disease, and today, Serbia has Zoya’s law, for the prevention and diagnosis of rare diseases, which has saved more than 3,000 lives.
Elin Haf Davies, PhD. – CEO, Aparito. Elin founded Aparito in 2015, a digital health company focused on developing patient centric digital outcomes to support decentralized clinical trials. Elin also serves as the Chair of Board of Trustees for Metabolic Support UK, a patient advocacy group supporting 400 rare inherited metabolic diseases.